Day Fourteen

Esa continues to progress towards coming off of the c-pap machine. He went down in peeps, but then was throwing up because of all of the air going into his stomach, so they put him on high flow c-pap and he is doing much better. He is peaceful and sleepy. He wakes up for short periods of time, finally like a normal baby, and is calm and peaceful when he is awake. It's so nice that he doesn't have a lot of wires and tubes. It is calming to see him in a closer to natural and normal state. I got to hold him for the second time and cried. Met a woman in the family room who's son had surgery on his back, so lucky to live here. Esa is doing so well. They are taking him down on the c-pap machine and hope to be able to get him off of it and on to oxygen alone in the next couple of days. After that, if he is stable we can go to "the floor". We could be up there by the end of the week! Nurses so nice, they keep coming by to see him and how he is doing. He got a bath and his hair is so awesome and it was so amazing to really be able to snuggle him without the hat, etc, etc. He got hiccups, but they didn't seem to bother him as much. Lots of stuff going on in the CICU, grateful to have a relatively healthy kid. They call heart patients clean patients, which is why they have their own CICU. Got a room to stay for the night

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